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Seth's Circle of Hope 2023
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About Fundraiser
Fundraiser by Kristen Murray
On October 21st we will mark the 10th anniversary of Seth's diagnosis with cystinosis and the 9th anniversary of Seth's Circle of Hope. We began our Circle of Hope celebration as a way to reclaim what was once an ominous date as an opportunity to embrace gratitude, strength and hope. Cystinosis Research Foundation (CRF) has served as a beacon of light for us since Seth's diagnosis. Laser-focused on funding research that leads to better treatments and a cure for cystinosis, the CRF has funded more than $65 million in cystinosis research projects since 2003 and 277 multi-year research projects across the globe. With your support, CRF has become the leading force in cystinosis research worldwide, advancing treatment options, improving lives and strengthening hope for all who live with cystinosis.
Our hope is especially vibrant today, as phase 1/2 trials of CRF-funded stem-cell transplant therapy have concluded. Six cystinosis patients have now been transplanted with their own genetically corrected stem cells. Initial results are promising and we have reason to believe that this therapy is a cure for cystinosis. Further clinical trials are needed before stem cell therapy will be available for children like Seth. It will take time, but we are optimistic and so very hopeful that Seth and all who live with cystinosis will have access to stem cell therapy and live free of this dreadful disease. Thanks to CRF, thanks to your generous and loving support, our hope shines bright.
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Supporter Wall
Mary Jane L donated $500! In memory of Isabel Taylor. |
Someone donated $50 anonymously! In memory of Isabel Taylor, mother, grandmother, and great-grandmother. |
Someone donated $100 anonymously! In memory of Isabel Taylor |
Someone donated $100 anonymously! Best wishes |
Someone donated $200 anonymously! In memory of Isabel Talyor |
Tracy M donated $200! In memory of Seth’s maternal grandmother, precious Isabel Taylor from Sherry’s y... |