SUDEP Aware
Registered Name: SUDEP AWARE
Business No: 822860052RR0001
This organization is designated by Canada Revenue Agency (CRA) as a registered charity. They comply with the CRA's requirements and has been issued a charitable registration number.
Raising awareness, encouraging discussion + funding vital research to prevent Sudden Unexpected Death in Epilepsy (SUDEP).
SUDEP Aware is a charity committed to finding the cause(s) and prevention(s) of Sudden Unexpected Death in Epilepsy (SUDEP) through:
- raising awareness (via its Making Sense of SUDEP campaign, PAME conference planning/sponsorship, and Professional Development program);
- improving understanding of SUDEP (by creating and making freely available, reliable, accurate information via its SUDEP information brochures and the one-stop SUDEP resource www.sudepglobalconversation.com);
- supporting research (via recruitment of study participants, providing research grants); and
- assisting families bereaved by, and living with, epilepsy across the USA and Canada.
It was co-founded in 2008 by Tamzin Jeffs, who lost her sister to SUDEP and lives with epilepsy, and paediatric neurologist/SUDEP researcher Dr Elizabeth Donner at the Hospital for Sick Children, Toronto.
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