SUDEP Aware is a charity committed to finding the cause(s) and prevention(s) of Sudden Unexpected Death in Epilepsy (SUDEP) through:

• raising awareness (via its Making Sense of SUDEP campaign, PAME conference planning/sponsorship, and Professional Development program);
• improving understanding of SUDEP (by creating and making freely available, reliable, accurate information via its SUDEP information brochures and the one-stop SUDEP resource www.sudepglobalconversation.com);
• supporting research (via recruitment of study participants, providing research grants); and
• assisting families bereaved by, and living with, epilepsy across the USA and Canada.

It was co-founded in 2008 by Tamzin Jeffs, who lost her sister to SUDEP and lives with epilepsy, and paediatric neurologist/SUDEP researcher Dr Elizabeth Donner at the Hospital for Sick Children, Toronto.